Palliative Care for Infants, Children, and Adolescents: A Practical Handbook,Used

Palliative Care for Infants, Children, and Adolescents: A Practical Handbook,Used

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Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with lifelimiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric endoflife care with comprehensive information for handson care in a single volume.Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decisionmaking process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counselors, the book also includes a list of additional resources and support organizations for professionals and family members.Contributors Stephen R. Connor, Ph.D., Vice President, National Hospice and Palliative Care Organization, Alexandria, Virginia Lynn Czarniecki, M.S.N., C.N.S., Advance Practice Nurse, Department of Pediatrics, New Jersey Medical School, Newark, New Jersey Betty Davies, R.N., Ph.D., Professor and Chair, Department of Family Health Care Nursing, University of California at San Francisco, San Francisco, California Deborah Dokken, M.P.A., Parent and Family Advocate, Chevy Chase, Maryland Dale Evans, R.N., Ph.D., Vice President, Hospice and Community Services, Community Nursing Services, Salt Lake City, Utah Chris Feudtner, M.D., Ph.D., M.P.H., Director of Research and Attending Physician for PACT (Palliative Care Team), Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania W. Jeffrey Flowers, M.Div., Director of Pastoral Counseling, Medical College of Georgia Hospital and Clinics, Augusta, Georgia Joel Frader, M.D., Professor of Pediatrics, Medical Ethics, and Humanities, Northwestern University, Children's Memorial Hospital, Chicago, Illinois Gerri Frager, R.N., M.D., F.R.C.P.C., Medical Director, Pediatric Palliative Care Service, IWK Health Centre, Halifax, Nova Scotia, Canada David R. Freyer, D.O., Associate Professor of Pediatrics and Human Development, Michigan State University College of Human Medicine; Division of Pediatric HematologyOncology and Bone Marrow Transplantation, DeVos Children's Hospital, Grand Rapids, Michigan Sarah Friebert, M.D., Director, Division of Pediatric Palliative Care, Children's Hospital of Akron, Akron, Ohio J. Russell Geyer, M.D., Professor of Pediatrics, Division of HematologyOncology, Children's Hospital and Regional Medical Center, Seattle, Washington Mary Jo Gilmer, R.N., M.B.A., Ph.D., Associate Professor of Nursing, Vanderbilt University School of Nursing, Nashville, Tennessee Sam Grubman, M.D., Pediatrician, Department of Pediatrics, Saint Vincent's Hospital, New York, New York Maria Gudmundsdottir, R.N., Ph.D., Postgraduate Research Faculty, Department of Family Health Care Nursing, University of California at San Francisco School of Nursing, San Francisco, California Richard Hain, M.B.B.S., M.D., M.Sc., M.R.C.P., F.R.C.P.C.H., Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Llandough Hospital, Cardiff, Wales Geraldine Haynes, R.N., B.S.N., Nursing and Palliative Care Consultant, Kirkland, Washington Ross M. Hays, M.D., Professor, Departments of Rehabilitation Medicine and Pediatrics, University of Washington School of Medicine, and Director, Palliative Care Consulting Service, Children's Hospital and Medical Center, Seattle, Washington Joanne M. Hi

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Frequently Asked Questions

  • Q: What is the primary focus of 'Palliative Care for Infants, Children, and Adolescents: A Practical Handbook'? A: The book primarily focuses on providing comprehensive guidance for professionals involved in pediatric palliative care, addressing the unique needs of infants and children with life-limiting conditions.
  • Q: Who are the intended audiences for this handbook? A: The intended audiences include primary care doctors, pediatric practitioners, specialists, home care nurses, hospice workers, and pastoral counselors.
  • Q: What topics are covered in the early chapters of the book? A: Early chapters cover the epidemiology of palliative pediatrics, ethical principles, education, and advocacy.
  • Q: Does the book include case studies? A: Yes, the book includes case studies that discuss the experiences and perspectives of parents dealing with pediatric palliative care.
  • Q: What kind of resources does the book provide for professionals and families? A: The book provides a list of additional resources and support organizations for both professionals and family members involved in pediatric palliative care.
  • Q: Is this book suitable for medical students or those in training? A: Yes, the book is suitable for medical students, as it covers essential knowledge and practices in pediatric palliative care.
  • Q: What is the format of the book? A: The book is available in hardcover format and contains 416 pages.
  • Q: Who are some of the contributors to this handbook? A: Contributors include leading experts like Stephen R. Connor, Lynn Czarniecki, and Chris Feudtner, among others.
  • Q: When was this handbook published? A: This handbook was published on June 21, 2004.
  • Q: What condition is the book in? A: The book is listed as used but in good condition.