The Story Within: Personal Essays on Genetics and Identity,Used

The Story Within: Personal Essays on Genetics and Identity,Used

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A thoughtprovoking collection of personal essays explores complex issues surrounding genetic identity.The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it.People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what health is or whose life has value. They write hoping to expand conversations about genetics and identityto deepen debate and generate questions. They or their families are affected by Huntingtons disease, Alzheimers disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, TaySachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.ContributorsMisha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl OHagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel (deceased), Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, Alice Wexler

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Frequently Asked Questions

  • Q: What is the main theme of 'The Story Within'? A: The main theme of 'The Story Within' revolves around the personal experiences and complex issues related to genetic identity and the impact of genetic disorders on individuals and their families.
  • Q: Who are the contributors to this collection of essays? A: The contributors include Misha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O’Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel, Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, and Alice Wexler.
  • Q: How many pages does the book contain? A: The book contains 280 pages.
  • Q: What type of binding does this book have? A: This book is available in paperback binding.
  • Q: When was 'The Story Within' published? A: The book was published on December 1, 2013.
  • Q: Is this book suitable for readers interested in genetics? A: Yes, this book is particularly suitable for readers interested in genetics, as it explores personal narratives related to genetic disorders and the implications of genetic identity.
  • Q: What kind of essays can I expect to find in this collection? A: You can expect to find personal essays that reflect on the complexities of living with genetic disorders and the broader implications of genetic information on identity.
  • Q: Is there a specific audience that would benefit from reading this book? A: The book is beneficial for anyone affected by genetic disorders, as well as those interested in discussions surrounding genetics, identity, and health.
  • Q: What issues do the essays address regarding genetic disorders? A: The essays address various issues including decision-making about testing, communication about genetic conditions, reproductive choices, and the personal impact of living with genetic diseases.
  • Q: Does the book provide insights into the experiences of families affected by genetic diseases? A: Yes, the book shares powerful experiences not only from individuals but also from their families, highlighting the emotional and social complexities associated with genetic disorders.